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A.J. relaxing after a long day of therapies |
Why is it so hard
for us to gain official understanding of what our kids go through.
Why is it so hard
for the bureaucratic officials in their high-end offices, the same ones that
are not even fully qualified or experienced in these areas, to truly understand
the day-to-day struggles and torment our kids face.
I am at the moment
so angry and stressed.
After fighting for
years to have someone give acknowledgement A.J. needed additional help,
fighting by myself to find the right direction, struggling to seek the right
services required, to start down the pathway of understanding and supports,
taking till he was almost 10 years old before the links were finally placed and
the 'official diagnosis' of Autism Spectrum Disorder given.
Fighting again and
again to gain help through the official channels, for recognition as to A.J.
having an actual diagnosed Disability, to help him source funding for his much
needed services and medications, etc.
Then taking till
this year for those pieces finally reaching and connecting with those much
needed additional supports and
assistance, by linking to NDIS and more services
that will help A.J. come out of the fog, gaining understanding and progress
within himself.