about Nanna

22 May 2016

Some Days are a Struggle...

A.J. relaxing after a long day of therapies
Why is it so hard for us to gain official understanding of what our kids go through.
Why is it so hard for the bureaucratic officials in their high-end offices, the same ones that are not even fully qualified or experienced in these areas, to truly understand the day-to-day struggles and torment our kids face.
I am at the moment so angry and stressed.
After fighting for years to have someone give acknowledgement A.J. needed additional help, fighting by myself to find the right direction, struggling to seek the right services required, to start down the pathway of understanding and supports, taking till he was almost 10 years old before the links were finally placed and the 'official diagnosis' of Autism Spectrum Disorder given.

Fighting again and again to gain help through the official channels, for recognition as to A.J. having an actual diagnosed Disability, to help him source funding for his much needed services and medications, etc.
Then taking till this year for those pieces finally reaching and connecting with those much needed additional supports and
assistance, by linking to NDIS and more services that will help A.J. come out of the fog, gaining understanding and progress within himself.

03 May 2016

What is SPD.... Sensory Processing Disorder????

helping to gain harmony within the seven senses 
When 'explaining' our child has ASD, Autism Spectrum Disorder, (or - is Autistic), there are still many people who will state they have no idea or knowledge regarding the exact specifics or understanding of the diagnosis/disability.
Then explaining the additional conditions the main cause of underlying concerns, it may confuse them even more.
*Noting* I know, most Autistics or family members don't like to label ASD as a disability, and in the general sense I can agree, although there are moments, like this, when it's the best way to explain the full extend of what ASD represents.
In general many have come to accept the term .... "Special Needs", this covering all areas of their diagnosis.

To help newcomers and novices better understand what they're beginning to encounter, or for some of us 'old-hats' at the game, to refresh our minds about a few things we may have forgotten, or to help with a new issue that may have recently arisen, etc, I will begin by reviewing the different dynamics of Autism.