those special moments with those that matter A.J. and Laura bonding time |
We don't have to be
Autism parents to face any unknown areas of LIFE ...
Days when we
question everything we do, hoping for something positive, wondering why we're
the ones that seem to repeatedly fall on bad times, struggling to make ends
meet, wanting the best for our family, trying to find that perfect solution to
an imperfect situation.
Facing everyday
situations as everyday people. Trying to make our lives look .......
"normal".
Yes I know we have
additional requirements that we have to continually face, although we must
remind ourselves that at any given time 'Neurotypical' families can also face
unusual events that can place them in difficult situations as well.
Over the years I've
faced many issues and situations, good
and bad experiences, some that were confronting and emotional, some I would
never wish on anyone. With all this, I've gained a lot and lost a lot, and
faced conflicting feelings and emotions.
Then all of a sudden
we get to a point in our lives when realising that no matter what we do or
where we go, the choices we make or decline to take, may not please or impress
others, it may even upset or irritate someone, although we need to accept it doesn't
matter, we live our lives to suit ourselves, while catering for our family and
loved ones closest to us.
With all the many
things I encountered in my life, and still today, I try to take a positive view
point from each single experience.
I now use my
personal story to share with others, for many reasons, the most important
being.....
1/ it helps me to
release the stress and tension that may build up in my day-to-day life.
2/ finding answers
and sharing hints and tips to help others, and myself, is very rewarding in
itself.
3/ it reminds me
that I am OK and I will make it through another day.
4/ because no matter
what, we are all going through similar situations.
Sharing the highs
and lows of life, showing we are just another family, the same as everyone
else.
In this day and time
with the norm being confronted with rushing around pushing ourselves to the
limit, catering to the needs of our loved ones, we find little to no time
remaining for ourselves.
I'm going through
one of those such days today as we come to the tail-end of our school holidays,
we have struggled to do too much at all, and A.J. was in one of his 'I can't
deal with it' modes, so the day had been a total write-off.
For whatever reason,
we are always in a stand-by mode, ready to help where we can when it all comes
crashing down.
Medication plays a
big part of his routine from keeping the day calm and settled, to helping to
gain that all-important sleep.
As I'm watching A.J.
I'm realising just how grown up he's becoming, and with that comes the all so
noticeable differences that his peers can clearly hone in on. These are the
times we stress and worry, hoping that he's coping well with life in general.
Sometimes it can be
really hard to find the right format to get him interested in anything, other
than the almighty Sony Playstation and the favourite game-of-the-day, therefore
to know if he's being included with other students, or choosing to include himself,
in any social or other various activities within the school environment can
become very concerning.
I'm not saying this
because he's not social, as this isn't the case in most situations, although we
do know how he can struggle with certain aspects of basic social rules.
A.J. for a very long
time chose to exclude himself, content to be watching from the sidelines,
observing all the goings-on in the wings, happily absorbing all he saw, then
putting his own personal take on what he'd viewed. This in itself was fine,
especially when he was satisfied to do that, although suddenly only a few years
ago, he wanted to join in and become involved, socialising for the first time,
this was when we realise we'd have to focus our teachings to help him in this
area.
Trying to reason
with someone that has an extreme perception of how his life should be, can be
very hard to achieve, then at the same time very amusing, so after some time I
stopped and thought..... "you know, why change how he is", if others
can't accept him for what and who he is, they don't deserve to know him.
A.J. already knows
what he wants in his little section of the world, and how he wants things to
be, working out his placement in all of this, with a reasonable overall
confidence in himself, so why would anyone want to dishearten his take on it.
Saying all that, we
still have to contend with him wanting the world to exist under 'his' term and
change to the way 'he' wants whenever he becomes overwhelmed or anxious,
causing a whole new set of issues to attend to.
Then when we sit
back and absorb all we have been through together, and all we have encountered,
by being a part of A.J.'s life, we are so very proud of our special man, and
pleased we gained the opportunity to be included, having such an important role
to help him go through the journey, coming to where he is today.
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