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A.J. and Myself,
we have a great bond together
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At times we
have, and still do, struggle to understand the whole picture of what A.J. has
been and is still going through; and with his additional needs, why it had been
so hard to gain those much needed supports early on, fighting for every piece
of assistance and understanding.
For that
very reason I stepped up and did what any loving caring 'parent' would do and
sought out whatever he needed, gaining anything and everything that I thought
would help to better his chances to be an active participant in
"Life".
Throughout
A.J.'s different stages, we had to repeatedly justify his need for additional
aids. Living in a somewhat remote area, outside the city dynamics where many
resources and services are easily accessible, we had to source out and adapt
alternate solutions.
We were
determined to connect with something/someone that would help with each separate
issue.
In general
we enjoy the adventure, love the progress and joy our little one gives,
although we agree there are still those days that can take its toll on our
emotional and physical being, and I'm quite willing to admit sometimes days are
so 'arggghhh' that I just want to pull my hair out and scream... No matter what
we do in those times, we can't seem to find a way to get things running
smoothly.
One of those
said moments are when we face the dreaded "HOMEWORK", and for us this
seems to have some horrendous effect on A.J. and nothing I do to help makes any
difference.
The concept
of this specific requirement whether it is involving assignments, essay
formation, general worksheets, or writing down his own thought or verbal
knowledge, trying to find the right information, then deciphering what is
required from the information he may have found, or more precisely, having the
ability to re-write texts into his own words and expression form, suitable to
the specific requirements for his school work, seems to be too difficult to
achieve.
Where does
he look ..How much does he need ..What parts should he use ..How does he set it
out?
When you are
over-analysing every step along the way, this can be stressful in itself.
The stress
from thinking about all of this becomes so overwhelming he shuts down
completely and can't focus on anything at all.
-These are
the moments many don't see or understand.
-These are
the moments when others have assumed our kids are 'lazy' or just 'making
excuses'.
-These are
the moments that we 'the parents' have to pick up the pieces.
So how do we
help, without doing the work ourselves.
How do we
gain support, when others seem to be oblivious to the obvious.
How do we
help, when looking at the question format and wonder what level of education
they're based on...... University!!!
We're
continually told, he's doing so well, he can do it by himself......
......but
what is it that he's really doing?
How do we
know if he really understands and comprehends the 'big picture' of all he's
involved in?
He's not
stupid... he's far from it....
Although
that doesn't help if we're not being informed he's struggling to gain the key
knowledge in the classroom, do we assume it's due to the teachers being
unaware, is he flying under the radar to those around him as to what he
understands and what he needs support with. What do we do next, if he's not
gaining the correct additional supports and assistance needed in these
areas. When his mind is so full of
everything and anything around him, as he struggles to filter out the different
noises and lighting distractions that the natural environment presents, and
becoming distorted, leaving him strained and worn out before he has even begun
to focus on the necessary things required of him at any given time.
A little
light within this long never-ending tunnel has come in the form of our NDIS
inclusion, allowing access to funding and resources that may help to
'alleviate' some of the issues A.J. faces.
These
resources are based around access to an O.T., Speech Therapist, Autism
Psychologist, and Physiotherapist; all working together, focusing on what is
best needed to help A.J. gain a little balance and harmony within his own
tormented body and mind.
Access to
these people and the services they provide will help A.J. to self-regulate his
sensory dysfunction and control how he reacts and relates to his surroundings.
This in turn
will enable him to gain a little control and focus on what is most important
for him in that moment, and then help him to understand and cope with school
involvement, peer connections, and more; then full circle back to the issue at
hand 'managing his Homework'.
Always know there are supports and help out there, don't let it go, stand up and ask questions, demand the answers. Find your local contacts to help you find the supports your child needs.
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