The
first thing we need to do as a parent of a special needs child, is to
learn about, understand, and accept what lay before us. As we grow
together we will adjust with the progress, by gaining knowledge and
addressing the situations our little munchkins face; by acknowledging
'all' aspects including 'additional' symptoms, and concerning issues.
Accepting
we will struggle with different concepts, we can still maintain a
normal lifestyle without needing to “change” who our child is.
We
can learn and teach our child to sense any pre-signs of melt-downs or
sensory moments, to help them gain and maintain stability within
their personal environment.
Once
we accept ways to 'better' our lives and lifestyle, by implementing
different services and resources, making better choices by setting
out a structured routines and roster system, allowing everyone to
find their place within the family network, it will then result in
gaining complete balanced harmony throughout the home environment.
When
that's done it will give us the confidence to extend these
initiatives into other areas our child is involved in, such as
schools, etc.
Remembering
this may sometimes be a bigger struggle than our first step, although
it can be accomplished when you have a well set-out plan and
willingness to persevere and be totally committed to the end result.
We
also need to be understanding and give consideration to any
additional mental health issues that may be faced by any of our
family members.
I
know as you are reading those words, many of you will cringe and
shudder; “yes” I said the 'Mental Health' words.
While
covering this specific topic, we must also discuss the fact that, as
parents, we face many additional circumstances ourselves, on top of
those general run-of-the-mill family situations, and we may also find
ourselves venturing into the domain of this specific area.
No
matter how organised and prepared we can be, we will face 'moments'
or 'meltdowns', when we can't cope, needing to release our
frustrations in some way.
This
doesn't necessarily mean anything is 'wrong', just that we are
'human' and we've simply come to a point where our body is saying
'enough', I need a break or down-time.
Realistically,
finding the time needed to take a step back from all the hustle and
bustle of life is hard enough, but taking a real break from
'everything' when we're having to deal with the bigger picture, is
something most of us wouldn't even assume would be possible. Saying
that, we 'do' have to find a way to balance out everything we are
confronted with, to allow ourselves the time to focus on 'us'.
Allowing
ourselves this elusive down-time in some form, to regenerate our
emotions and physical being, enables us to also regroup our thoughts
to face another day.
Looking
after ourselves, our health, diet, sleep, exercise, and socialising,
sometimes we can still all get into a 'rut' and before we realise it
we're so consumed with what the household needs, we forget about
ourselves. We need to understand that if we are not functioning as a
whole we cannot be the best 'us' we need to be for our family.
As
we begin the home-run to yet another years ending, it can be the best
time to put this into action. You may not be able to have a 'holiday'
as such, but look at your life in a positive light and see what you
can do for yourself.
Choose
from a 10 minute break, allowing yourself to have a proper relaxing
bath, take a walk, or do some gardening or activity you enjoy; or
maybe something more in-depth by arranging a babysitter so you can
gain a couple of hours and go out for tea, or anything else 'you'
would like to do.
Also
allow some quality time as a family to do something relaxing, without
the pressure that is constantly demanded with time schedules,
routines and expectations from the weekly meetings, appointments and
other stressful commitments; by going to the park or pool/beach/river
with a picnic lunch and games, or just do nothing and chill out
completely at home watching movies, playing board games and more.
While
addressing Mental Health and emotional well-being in our lives, we
must accept no-one is completely immune to the effects no matter how
well prepared we believe we are, and if we find ourselves confronted
with our own personal experience going down the path of uncertainty,
we need to acknowledge it and find supports to help us get through it
.
The
smallest of things may upset us, we could become frazzled for no
obvious reason, if this happens we need to notice these and any other
signs, anything that is different to how we normally cope with daily
situations, and take measures to deal with them.
Stress
and Anxiety is not a sign of weakness.
Having
someone to talk to is the first step, whether it be a family member,
friend, or maybe a professional; but never never ignore these early
warning signs.
Happiness and Calm to all xxxx
If you need assistance always contact your medical advisers or call
beyond-blue 1300 22 4636 - or - Lifeline 13 11 14
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