There are
many situations, disabilities, 'issues', differences, we face that may hold us
back from being who we feel we are deep-down inside.
The
stigma of labeling, may deter many from gaining help and support at the time it
is most needed and beneficial. The embarrassment of being seen as a neglectful
or non-attentive parent, or having others view their child as 'flawed' or
simply disobedient.
Facing
frustrating moments, trying to explain to others why our kids react/or don't
react to certain situations or events.
No-one is perfect, we all have 'moments'
when things become so overwhelming we just can't cope or focus.
Why
should we have to explain, why should we need to justify these 'moments' to
others, when 'anyone' can have a form of Hissy-Fit, Melt-Down, or
Temper-Tantrum.
All these
issues can come into play when the right supports aren't evident or easily
accessible.
Without
knowing where to go to gain help, or who to see for the right form of support,
can be more confusing and frustrating.
Right
from the start we knew there were differences and delay with A.J. among other
concerns, and during each hurdle we tried to reach out for support and help,
and each time the person in front of us would put their arms in the air,
telling us there was no help, so we were left to cope on our own.
These
issues and struggles still remain for those at the starting point to gain the
right information, you receive a diagnosis or you suspect there is a concerning
factor, and yet you still aren't given a full explanation, understanding, or
any form of direction to access support, or who best to turn to that would best
help with the process.
We still
struggle to access many supports locally, seeing many having to travel out of
our area.
And we
are still struggling to decipher the maze, if we even have one presented to us.
Yes there
is help out there, but it's not promoted publicly enough for the layman to know
where to look, and then when we think we have found something suitable, we may
not fit their exact criteria.
Lithgow
Nanna's Touch ASD Support is striving to help resolve this,
By
presenting as much support and guidance through - ASD Support Group Meetings -
Social outlets -
and now
with our annual Accessible Lifestyle Expo (to be held on 21st October 2017)
Our site
here will help provide supports, services, and more with new information
continually being added.
I hope
this helps in any little way.
Happiness
and calm to all, xxxx <3 <3
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