At the
beginning of this Year I decided it will be the beginning of a new era in many
ways.
Determined
that we open the chapter on a positive note and with the foresight to awareness
of every step and stage, knowing that issues can and will arise, although this
time being on the frontline to assure that A.J. will maintain stability and his
rights will be taken into consideration.
So far I
can honestly say my determination hasn't wavered and we are still forward
progressing in many areas.
Living in
what has become a fast-paced world, rushing here and there trying to get
everything to fit into the busy schedules we have so easily forced ourselves
into; we seem to have forgotten about the little things, the simple pleasures
in life that can make us smile and relax for no other reason than enjoyment.
‘Our family’
definitely has been in hectic mode, especially over the past few years with the
continual issues and ‘supposed’ dramas we’ve had to cope with. Then add the
usual regular appointments, meetings, therapies, and so on, and it becomes
obvious we are all but drowning trying to keep our heads bopping above the tide
of emotional turmoil.
With this
year being a positive experience for our family so far and wanting to keep a
calm environment; although easier said than done, I set out all our
requirements to assess and systematically re-plan appointment dates, etc, allowing
time to fit in those all-important time-out moments, and some official family
time (and ME time) to focus on the positive side.
A day in
the park, movie night at home, just sitting around the coffee-table chatting
about everything and nothing, playing cards or other board games; with so many
ways to interact without it costing a cent, there isn't any excuses.
The
benefits of having a break from a few of the more regular routine appointments
etc, and having free-time for a change, last weekend I set my sights on my
sewing/office room, trying to rearrange everything to be more time efficient
and organised for my blog, sewing and other plans; with A.J. on my tail most of
the time due to adjusting to his changed routine and the loss of his Asus
android tablet (being damaged beyond repair), I find the drone of his voice
right behind me involving replays of all his favourite games and how he
interacts with each different app, the main one being of course ‘Minecraft’, it
is very disappointing as he had some amazing worlds and constructions saved on
them.
Deciding
now is a good time to begin teaching A.J. the finer points of health and
fitness, so I have set out a plan to venture out to our local park for a quick
paced trek around the path walkways for a fitness regime. Not knowing how long
this will last, especially with the school routine becoming more and more
demanding, although if just for the social outing concept we are definitely
enjoying the experience.
The
highlights and lowlights of being at highschool, after 8 weeks A.J. has
confronted many challenges and hurdles already, he is however still enjoying
many moments and relaxed with the knowledge that…………..
“They understand my WEIRDNESS”
Facing my
first IEP meeting, with a hazy memory of past meetings consisting of feeling
intimidated due to the confrontation effect by a group of officials all facing
me, with high expectations and dictating unrealistic demands.
I walk in
to see A.J.’s head teacher from the support unit, and me. In the casual
atmosphere I am asked my opinion regarding his ability and if he would cope
with the format set out for him. Such a pleasant surprise!
I then
received more positive news with the reviews from his mainstream teachers (something
that will be regularly updated) they all stated he was, settling in and joining in conversations although “going
off-topic at times” and needing assistance to focus; being acknowledged also
for his “sense of humour”, as a positive outlook. Although struggling to join
group activities in science with the teacher stating his reason for doing ‘sole’
work being…
“When I
discover the Cure for Cancer, I want to take ‘all’ the glory”
Arriving
home I received a letter in the post reading-
A.J. has been awarded the……
TEACHER’S
COMMENDATION
For ‘ACTING
SAFELY’
Such a proud parent
moment!
A.J.’s
school routine is definitely settling in well, so now the influx of
homework/assignments.
Having very
minimal involvement with the actual format of the essay writing process, or the
concept of expressing his own words in written form; he is struggling to stay
focused, his mind continually wandering, becoming tired and unsettled after such
big days at school, and then the signs appear showing his symptoms of
pre-meltdown mode.
Knowing how
he is managing the simple things, we then face the reality when he becomes
overwhelmed by the pressure to do out-of-the-norm activities, with the
expectation to complete assignments about topics he has no knowledge of, while struggling
to then express it in his own words, in a minimal set time.
We break
each section down, separately, hoping he will manage each step easier, although
still confused to the concept he is faced with.
Number one
assignment - geography – World Heritage Listing and Sites (he has 3 weeks)
Choose an
international site on the heritage listing and create a tourist brochure, and
then write a letter to persuade the UNESCO committee to keep the site
permanently on their listing.
He chooses
a site – Canterbury Cathedral, he finds the information on Google and reads the
words, so many words, “how do I choose the right words, why can’t I use those
words………...”
Crumbling
under the pressure of an expectation he doesn’t know how to cope with, he just
releases his emotions and “what’s the point of this, I can’t
understand……………...”
Lots of
breaks, assuring calm words, more discussions and lots of persuasive assistance
and he finally gets it done. He is so relieved and happy that he finally had it
ready to hand in.
With only one
day between, he is faced with yet more work,
His second
assignment – PDHPE – Relationships and Self-Esteem
“And why do
I have to do it now? I need a break first…...”
Assuring
him we will break it down, with seven sections, one for each day before it is
due, we finally sit as A.J. reads part one - Construct a Collage to Define your
Sense of Self.
Hmmm this
will be Interesting!!!
A.J.-“How
can I make a college?”
Me-“No hunn
it’s a COLLAGE”
A.J.-“Well
that’s silly, what does that mean??”
With a
simple explanation to what pictures and items he can put together I leave him
at the computer to gather and download a list of pictures to represent the
things he enjoys……such as Minecraft; the TV show ‘the Big Bang Theory’; Lego
Ninjago; Sony Playstation 3; journals and pens; pictures of himself, our
family, our dog, etc; school logo; the meaning of A.J. and more….
With a few
little breaks to stretch and move around we finally set most of it on the
computer allowing extras to be added as we find more.
Another day
and now part two -
-define
Self Esteem and identify four factors that influence our sense of self.
After
spending the next half hour ‘literally’ finding the most comfortable of BLACK
pens, I then try to decipher what it all actually means in a way that A.J.
understands.
As the
stress builds up ….for me….. I see A.J. squirming, confused, and so we go to
Google, yet again, and search for ‘Self Esteem’……and once again go through the
process of explaining how to re-word what he has found in his understanding.
After a
long and drawn-out drama of why he has to do it and a break to regain his
composure, he then writes out ‘in his words’ what he feels about ‘his’
self-esteem
“My self-esteem is generated
by accomplishing to differ the most common activities of other people. I have
good self-esteem because - I am not a jock running around a field like a blood
thirsty turkey with a football. I have a real head on my shoulders, I’m a good
person with good Karma; I’m an Individual!!!”
And with
that he got up from his chair and stated for all to hear, head high and proud,
“I am not a follower, I’m
a leader!!!”
I took a
deep breath, wiped the tear from my eye and said “I’m so proud of you”
And I put
my arms out for a hug, with A.J.’s response, a slight snuggle and a pat on my
shoulder saying “there, there”
And so
another day has ended and tomorrow will begin the next journey to explain -Why!!!
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