about Nanna

28 January 2016

Meetings, appointments, therapies and treatments

sharing our love with A.J.
the moment we were blessed to have him permanently in our lives.
At the start of every year we have the tedious task of gathering together the long list of services and supports A.J. accesses throughout the year and begin organising new referrals, updated reports, to then arrange new appointments and meetings for the resources that are working and still required, or if we need new direction and assistance to then begin researching for what is required and available.
Once we have correlated everything together and happy with what is needed, we then begin the task of fitting everything in with the family schedule.
Today was the first of such appointments where A.J. was able to vent and express his true self to his psychologist, one fully trained with autism and related diagnosis.
While I personally see the benefits he gains from these sessions, and A.J. also happily attends and at times will even request additional appointments for the benefits these sessions provide him personally; the ideas and suggestions are also shared with other areas he connects with to extend his supports. I too attend sessions to gain information support and direction to better aid and assist A.J. with his journey.
Unfortunately we still struggle with skeptics that only see the negativity they've heard regarding the word 'psychologist' and resort to stating comments such as... 
"why is he seeing a shrink" and "why would you take a kid to counselling"
After all the banter I have learnt to shut off from their opinions and theories, and hope that A.J. isn't effected by the small mindedness.

Seeing the positive outcomes that has been the effects of bonding with the same person for the past 5+ years, someone that totally gets all his little idiosyncrasies, mannerisms, and individualised personality and behaviours, has supported everything he has experienced, giving the right support he has needed, from someone outside the limited network he calls "family". By allowing him the chance to know what it feels like to receive unconditional friendship and a safe place to express all his emotional being without judgement or ridicule, showing their commitment to assisting him in the way he needs it most.
That in itself is a special thing.

Afterwards posting on my personal page......
a little melancholy today... not sure why really....
but tomorrow A.J. begins year 8 
he is so excited and can't get there quick enough,
I'm so proud of how he's going, the steps he's taken and confidence he's showing, 
I know we are over the biggest hurdles and stepping into a new area,
with his supports and personal commitment he will achieve anything 
......I've had a light-globe epiphany, knowing he 'will' make it, knowing he 'will' be able to step into the unknown when needed and 'make a go of it', and that is the best thing to know, 'trying' alone is a feat in itself regardless of the outcome and it must be acknowledged for its worth.

While understanding all the differences A.J. has to deal with, I still try to maintain normality with his every day existence, the expectations I have from and for him are to what any parent would expect from their 13 almost 14 year old child, with a few allowances, but still requiring the same outcome.  
I don't ever want him to be defeated without ever trying, I want him to feel he has the same chances that anyone may have.
With the past behind him from those that believed he wasn't worth the effort, to then transitioning to high school with a team willing to acknowledge, work with, and support his differences, he has become a different child, wanting to step forward rather than retreating into his safety zone, a habit that I thought would continually hold him back.

By having this outcome A.J. now has a positive outlook to give him future direction when wanting to achieve better than he has. I know the realism of his diagnosis may be an issue to others, but I will always support his choices and help him find ways to gain something from his options.


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