about Nanna

25 April 2016

Everyone, goes through those, when-will-it-end days.

those special moments with those that matter
A.J. and Laura bonding time
We don't have to be Autism parents to face any unknown areas of LIFE ...
Days when we question everything we do, hoping for something positive, wondering why we're the ones that seem to repeatedly fall on bad times, struggling to make ends meet, wanting the best for our family, trying to find that perfect solution to an imperfect situation.
Facing everyday situations as everyday people. Trying to make our lives look ....... "normal".  
Yes I know we have additional requirements that we have to continually face, although we must remind ourselves that at any given time 'Neurotypical' families can also face unusual events that can place them in difficult situations as well.
No-one is immune from dilemmas and dramas.

19 April 2016

A Day in the Life of......

one of the performances at our local Ironfest,
fun events and lots of noise although A.J. still enjoyed the day
It's been a long hard journey, we can all agree to that, trying to help our not-so-little man address every part of his diagnosis and overcome each obstacle and complication as he faces them, while also helping him to manage every setback.
So when he reaches each new milestone, we all instinctively understand the need to acknowledge it.
No matter how minimal or insignificant others may view each single step and achievement, to us they are all worth celebrating.
Those 'simple' accomplishments may have been the reward for months and months of therapy and specialised assistance, as well as repetitive learning and training programs.

30 March 2016

Knowing and Understanding the Full Picture.....

special moments with Laura
can made all the day's anxiety disappear
Our kids are very prone to facing medical anomalies, and A.J. is no exception.
From the time he came into our care at only 2 & 1/2 years of age, we have addressed so many medical and personal issues, most being out-of-the-norm to many children.

Before we even knew about, could acknowledge, or address the symptoms and diagnosis relating to A.J.'s Autism, we had to understand and decipher the initial concerns relating to the neglect he faced prior to being with us, leaving him not only malnourished, but also facing many delays, plus additional emotional and physical difficulties.
Not knowing where to go or who to turn to for help or support, we faced the groundwork ourselves, working hard to help him, step by step, to gain confidence and trust with everyone and everything around him, addressing each and every issue one-by-one, at 'his' pace.

14 March 2016

The honesty of Autistics -

one thing we can definitely expect......HONESTY
In reality, it is so refreshing to see many of our children actually being able to have a voice and to express verbally their own feelings and thoughts, although all too often their display of 'the truth' will be misunderstood by others.
As our kids struggle to understand the expected 'social niceties' or 'specifics of expression', especially when they're still struggling with the basics of correct verbal communication, the results are negative reactions from others hearing/reading the words or comments!
To these kids a spade is a spade, so why call it a shovel or scoop?

08 March 2016

Helping to understand the NDIS process.....

having a folder with all the relevant information is a must 
How many agree......
When originally looking for supports, regarding the right direction for accessing assistance or sourcing specialised services, and so on, the information you found was so overwhelming, swamping you with conflicting so-called well-meaning suggestions and ideas on what to do and where to start, that you were more confused than before you began looking?
I definitely agree - 'YES' I did fit that category.

03 March 2016

Ready for anything... the challenges continue...

it's so important to focus on the positives
One of the hardest parts of Autism, we, as parents, have to address, is facing the subject of ‘Medication!’
Many of us at some point have had to (or will have to) confront these discussions, make the decisions, attempt the reality, and accept the outcome.
Along with making the decision to begin trialing these supports, having to make adjustments and changes as they get older, addressing any side effects and other issues that go along with it, while also deciding whether they are effectively working and fully beneficial to our child.
As hard as all that is to deal with, we are also being confronted and bombarded with the social stigma and other people's personal opinions on what 'they' think is best.

27 February 2016

Supportive and Nurturing ways to Socialising......

socialising the best way for the child
(picture from clipart)
The one thing I continually stress and worry about with A.J. is the interactions he has/doesn't have with his peers. Knowing how he still struggles with the correct verbal expression in relation to his conversation with others.
Without knowing the context of what is appropriate and expected verbal banter, having his own format of using unconventional conversation content for expressing his opinion and lifestyle, totally confusing and bewildering anyone not use to this form of interaction.